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This is his Country or State Flag

Tom Smith lives in California, USA. He was 53 when he was diagnosed in April, 2013. His initial PSA was 5.10 ng/ml, his Gleason Score was 7b, and he was staged T1a. His choice of treatment was External Beam Radiation (Other). Here is his story.

Men beware!
Prostate cancer patient exploitation, testing and treatment dangers.
Revised: January 11, 2017

In my opinion:
Read the hard facts about prostate cancer testing and treatment that no one will tell you about, even after it's too late. This is information all men over 40 should have. Also, anyone concerned about cancer in general or privacy issues should read this warning. Prostate cancer patients are often elderly, over treated, misinformed and sometimes exploited for profits. The testing, treatment and well documented over-treatment of prostate cancer often results in devastating and unnecessary side effects and sometimes death. Sometimes profit vs. QOL (quality of life).

Per some studies:
Some studies have verified more deaths caused from prostate cancer testing and treatment then from prostate cancer itself.
1 man in 6 will be diagnosed with prostate cancer in his life.
About 233,000 new cases per year of prostate cancer.
About 1 Million prostate blind biopsies performed per year in the USA.
6.9% hospitalization within 30 days from a biopsy complication.
About 1.3 to 3.5 deaths per 1,000 from prostate blind biopsies.
0.2% deaths as a result of prostate cancer surgery.
60% had a prescription filled for an infection after a Biopsy.
Medical mistakes are the third cause of deaths in the USA.
Black men are at an increased risk of prostate cancer.
Prostate cancer patients are at an increased risk for fatigue, depression, suicide, heart attacks and accidental death.

Excuse the mostly accurate humor and sarcasm. Its intent is to entertain and educate while reading this possibly laborious text.

Prostate cancer patients are often elderly and exploited for profit, the treatments offered has horrible side effects, and newer treatment options are either unavailable or not offered to patients or available outside the USA. Prostate cancer is often slow growing and of low risk and can just be monitored. Often no treatment is the best treatment.

If a surgeon is financially responsible for a building lease or a large staff or an oncologist is also responsible for a lease on 5 million dollars of radiation treatment equipment, do you think they would be more or less upfront about the benefits and hazards of treatment? Do you think the profit margin would compromise some doctor's ethics?

A 12 or 18 core blind biopsies, holey prostate! Men with a high PSA tests result are often sent to an urologist for a blind biopsy. Men should be told about other options: Percent free PSA test, PCA3 urine test or a MRI test before receiving a blind biopsy. These tests can often eliminate the need for a more risky and invasive blind biopsy. Insertion of 12 to 18 large holes through the rectum into a gland the size of a walnut, a blind Biopsy can result in prostate infections, a risk of permanent or temporary Erectile Dysfunction, urinary problems, hospitalization and sometimes even death from sepsis (About 1.3 to 3.5 deaths per 1,000 from blind biopsies). There is also controversy that a biopsy may or may not spread cancer because of needle tracking. A blind biopsy can also increase PSA reading for weeks or months. Blind biopsies are almost never performed on other organs. One very prestigious hospital biopsy information states: "Notice that your semen has a red or rust-colored tint caused by a small amount of blood in your semen". Another large prestigious hospital states "Blood, either red or reddish brown, may also be in your ejaculate." These statements are often an extreme exaggeration. Very often a man's semen will turn into thick jet black goo. This could be an unpleasant surprise for a man and especially for his unsuspecting partner. However if a biopsy is performed before Halloween or April Fools' day this may be of some benefit to a few patients. If some very prestigious hospitals are not factual about the color of semen, what other information is not being disclosed or misrepresented?

Bone scan scam: Prostate cancer patients are often sent for a bone scan. A bone scan has about a 13% chance of having a false positive and only 3 men in 1,000 have bone cancer who have a bone scan. Bone scans may sometimes be unnecessary in lower risk prostate cancer patients.

Low risk cancer patients or patients with advanced age are often sent for aggressive treatment by some doctors when monitoring is usually a better option. An extreme example of over-treatment is one SBRT radiation clinical trial. Prostate cancer patients (victims) where intentionally treated with a huge dose (50Gy total, 5 fractions) of radiation resulting in disastrous long term side effect for some of these men. A large percentage of prostate cancer patients in this clinical trial had low risk prostate cancer.

Clinical trials may or may not be hazardous to patients? The goal of a clinical trial is to gather information; the intent is not necessarily to help or cure patients. In a clinical trial, if someone is given a treatment that will harm them (as in the above example) or given a placebo in place of treatment or needed treatment is withheld, the patient may be deceived or harmed. Investigate before you participate in any clinical trial.

Privacy and confidentiality: Prostate cancer patients are asked to fill out a series of EPIC questionnaires and other standard questioners. The EPIC questionnaire asks several intimate details about patient's sex life, urinary and bowl function. By a prostate cancer patient completing an EPIC questionnaire, he may be able to assist his doctor, nurse or other office workers track his progress or decline. By refusing to fill out these questioners one can help insure his privacy, dignity and insure he do not unknowingly become part of a study or clinical trial or other collective survey or have his information forwarded to multiple databases. He may be told these questioners and records are "strictly confidential" (as stated in most EPIC questionnaires); this statement is misleading. Most of the time a patient has no idea who has access to the records or why the records are being looked at. Who has access to medical records? Probably everyone that works in a medical office or building has access to the records. This may include/however not limited to non-medical employees, office workers, bookkeepers, janitors, insurance companies, temporary high school or collage interns, etc. This may include other medical facilities, programmers, hackers, researchers, etc. Often records are placed on a health information exchange (HIE), dozens, sometimes even hundreds or thousands of people may have access to the records. Some major databases (SEER) are linked to Medicare records to determine "the final outcome" for researchers and studies. Records may be packaged and offered for sale, this does happen. If a doctor, patient or insurance company is involved in a criminal or civil case, medical records may become public court or law enforcement records. If a patient has radiotherapy he may have a photo taken before treatment to verify identity. All patients should get a copy and read any confidentiality disclosures statements (HIPAA statements). Patients can also become the victims of financial or medical Identity theft. Under the HIPAA laws you are entailed to a copy of all your medical records, however if you try to obtain a copy of extensive records as in a hospital stay you may be met with resistance. I recently went to a new optometrist for glasses; I was given a form that asked details about my heritage and even my mother's maiden name and a form for my complete medical history. I also went to a hearing aid center in a department store to get a free hearing test and was given forms inquiring about personal information and my complete medical history. This is information I do not want filed in a department store. All patients should avoid supplying unnecessary information whenever possible, supply relevant information only. In the USA identity theft is very common, growing problem and is often financial devastating. Medical forms can be a good source of information for thieves.

A patient's dignity: Prostate cancer treatment is often degrading and demoralizing. EPIC questionnaires can be counterproductive impact a patient's dignity, privacy, confidentiality, and self image. EPIC questionnaires probably have an increased potential and greater impact on patients for privacy violations because of its format, nature and personal content (potential for HIPAA privacy law violations). Patients may mistakenly believe the EPIC questionnaire is a requirement to be filled out. Also the term "strictly confidential" can be misleading and ambiguous. One blogger patient posted he filled out and turned in his "strictly confidential" EPIC questioners only to have every female office staff member read it and ogle him. He was dismayed, resulting in him not filling out any more EPIC forms or any other forms and he became very uncomfortable and evasive with the office staff. The drawbacks of this form seem to outweigh any potential benefit for some patients. Medical testes and procedures can be degrading and embarrassing for both men and women. Many women prefer or will only see female doctors and gynecologists. What percent of men will not feel comfortable or be completely honest or not even seek help concerning ED, catheters, incontinence, depression, etc when consulting a female doctor, nurse or office worker? Another blogger posted he went to a radiology clinic for a prostate cancer treatment consultation and after his doctor visit he met with a nurse and she informed him that she would be inserting a catheter in him for a treatment simulation and she will also be his nurse, he will not be seeing the doctor after the treatments started, she will have regular visits with him, assist with the treatments, manage his side effects and other issues. This patient left the clinic and made other arrangements; he did not specify what other arrangements he made.

The most common treatment options for men with prostate cancer are radiation, Brachytherapy, surgery, cryotherapy and hormones (ADT). Sometimes chemotherapy, immunotherapy and castration (orchiectomy) are used. A combination of treatments is often used. Most or all of these treatments have long term or short term side effects. Often men are not told about all of the true risks and side effects or they are downplayed for both a blind biopsy and treatments.

LDR Brachytherapy is permanent radioactive seed implant. This treatment procedure implants about 50 to 100 radioactive seeds in the prostate, sometimes resulting in urinary problems. The patient will literally become radioactive for months and up to 2 years. The patient may set off radiation alarm and also possibly metal detectors at airports. He will also be required to use a condom, have no close contact with pregnant women, children and young animals or pets for months or longer. Occasionally he may even eject radioactive seeds during sexual activity or urination. The patient will become like a walking Chernobyl, having radioactive scrap metal and emit radiation from his crotch. He will also probably be required to carry a card in his wallet stating he is radioactive. The videos of this procedure seem to be disturbing and bizarre. However Brachytherapy seems to have less sexual side effects than some of the other treatments available.

Men are sometimes prescribed hormone therapy (ADT therapy), AKA chemical castration as an additional or only treatment. Hormone (ADT) therapy is sometimes over prescribed for profit, per some studies. Hormone therapy is often very expensive (may be profitable for doctors if provided at the doctors office and not a pharmacy) and can have horrible, strange and devastating side effects, feminization, fatigue, weight gain, etc. His penis could shrink and his testicles can completely disappear, he may grow breasts. This treatment can have so many mind and body altering side effects that doctors will often not inform patients about all of them. Men are sometimes castrated (orchiectomy) as a cancer treatment to reduce testosterone. Some studies (Medicare and financial) have proven some doctors do over prescribe ADT therapy for profit (depending on Insurance payout rates/profit margin). When insurance payment mounts for ADT decreased so did the number of patients being prescribed ADT therapy! Over-treatment is extremely unfortunate and avoidable.

Nerve sparing Robotic-assisted DaVinci surgery is touted as being a better treatment and having fewer side effects, this is usually an exaggeration. The nerves can not always be spared. Robotic surgery can result in a faster initial recovery. Long term risk of sexual dysfunction, incontinence, fatigue, etc. is about the same as conventional surgery. Patients undergoing surgery are at a small risk of developing post traumatic stress disorder (PTSD) and about a 25% chance of long term or permanent fatigue. Also .2% risk of deaths as a result of prostate cancer surgery or medical mistakes. Patients are sometimes not told about the high risk of a shorter penis after surgery due to the shortening of the urethra.

Patients should not be na´ve: Medical mistakes are the third cause of deaths in the USA. Medical mistakes cause more deaths then suicide, firearms and motor vehicle accidents combined. Countless other patients have been harmed by medical mistakes. If you are having surgery, brachytherapy, a biopsy or a procedure take precautions if possible. Have someone qualified or knowledgeable monitor you and your medications, etc. Doctors, nurses and technicians can be profit motivated, use obsolete procedures, be lazy, incompetent, make mistakes and be apathetic or rushed. Occasionally harm can be done or not prevented with intent. Doctor's offices and clinics can see many patients in a relatively short amount of time. This may be a disadvantage to patients, empathy and quality of care can sometimes be compromised. Sometimes a nurse, medical assistant or an office staff member may be the person that overseeing much of a patient's cares. Patients should be aware that sometimes QOL (quality of life) may be secondary or an absent goal in treatment. Sometimes over-treatment for profit or to prevent an unlikely death or metastization from low risk cancer may be the primary or the only goals of cancer treatment.

A blind biopsy or treatments are often worse then the disease: Resulting in Chronic/permanent fatigue, incontinence, depression and sexual dysfunction. Hormone therapy may have an extensive list of side effects that can be devastating for men. Biopsies and treatment are degrading, stressful and often unnecessary.

The risk of long term chronic and permanent fatigue (that can result in depression) is almost always understated if mentioned at all too many patients. Per some studies and depending on your treatment; the risk of long term or permanent fatigue is about 25% to 60%. Radiation with Hormone therapy has a high risk of fatigue. Long term fatigue also increases the risk of clinical depression and suicide.

In my opinion: Castration, ADT hormone therapy (chemical castration), Brachytherapy (radiation seed implant), radiotherapy, surgery and blind biopsies are often psychically and emotionally brutal, traumatic and disturbing. These types of treatments (Frankenstein style of medicine) are primitive and almost beyond belief in today's world of advanced technology. Newer treatments like, HIFU, hyperthermia, Boron Neutron capture therapy, focal Ablation (only treating the cancer and not the entire prostate) and orphan drugs should be approved and used when appropriate. Biopsies should be limited to selective MRI guided samples only; blind biopsies should seldom be performed.

Advances in prostate cancer treatment mostly consisting of newer more accurate radiation treatments, robotic surgery and new drugs. These advances sound like greater strides have been made. However most of these approved advances are of limited benefit to prostate cancer patients and still have about the same amount of long term side effects. Compared to other technologies, computers, communications, electronics, aviation, etc., Cancer treatment approved advances have been dismal. QOL (quality of life) issues have not been adequately addressed. Profit sometimes outweighs QOL.

Some oncologists us Radiotherapy (EBRT-external beam radiation therapy) for cancer treatment. New technology consists of: IMRT, SBRT, IGRT, VMAT, TrueBeam, Cyberknife, etc. This newer, faster, more accurate and easer to setup radiation equipment is of much benefit for doctors, staff and a good selling point to patient's. However as far as reducing long term side effects, only small gains have been made with the newer radiotherapy equipment. A patient should be skeptical if exaggerated claims are made about reduced long term side effects, especially fatigue and ED rates. About 25% of radiotherapy patients can expect an alarming temporary "bounce" (spike) in the PSA value after treatment. Patients should inquire as to the treatment plan, Gy dose and fractions, margins, testicular dose, constraints and age of radiotherapy equipment to insure excessive radiation exposure treatment is not given.

Sometimes radiotherapy can result in a 5% to 30% temporary or permanent drop in testosterone levels. Excluding hormone therapy, this drop is determined by the testicular radiation dose (treatment equipment and planning). A below normal drop in testosterone can result in increased fatigue, depression and sexual dysfunction and other symptoms.

Radiotherapy (EBRT) can also occasionally result in secondary cancers and damage to "organs at risk" (organs close to the prostate). Radiation has high probability of sexual dysfunction. Sometimes radiation can also cause bowel and urinary problems. A 5 day SBRT radiation treatment is now commonly available with about the same results and side effects as a 9 week radiation treatment.

It seems all of the best treatments for prostate cancer have not been approved and most are only available outside the USA. Treatment options outside the country or under development are HIFU, Laser, Hyperthermia, Boron Neutron capture therapy and orphan drugs, just to name some. Focal Laser Ablation is a good option with fewer side effects however it is not widely available in the USA and sometimes not practical.

Any cancer patient (man or woman) who are being offered chemotherapy should be particularly cautious. Chemotherapy can be extremely toxic and sometimes deadly. Without genomic testing or proof of the effectiveness of the specific drug being used on the exact cancer type being treated, chemotherapy can be more toxic to the patient then to the cancer. Chemotherapy may be extremely expensive, profitable for some doctors (if dispensed by the doctor and not by a third party) and can be misused or overused.

Do you think any regulatory agency will stop the exploitation of elderly men with a high PSA or prostate cancer or approve new treatments at the risk of financially bankrupting thousands of treatment facilities and jeopardizing thousands more jobs? Do you think any regulatory agency will set guidelines for treatment and monitoring at the risk of upsetting the doctors who are over treating?

Often few good choices exist for treatment. A prostate cancer patient treatment choice often ends up being the least worst choice or the choice with the side effects a patient thinks he can tolerate. Patients can be misled about the expected side effects and results of the treatment being offered. The risk of chronic fatigue and depression is often never disclosed.

Long term care consists of regular PSA testing for years. Long term care for side effects is often lacking or exploitive or ineffective. Often complaints of side effects are disregarded by nurses, doctors and sometimes referred out to other doctors. The patient is sometimes left to figure out what to do about his side effects with the resources available to him. Long term side effects often consist of fatigue, bowel or urinary problems, sexual dysfunction, depression and other symptoms. Patients with complaints of chronic fatigue are often told to exercise, get plenty of sleep, pace yours self and eat a healthy diet; this advice is of limited help for chronic fatigue. Often treatments for long term side effects are embarrassing, degrading, unavailable, nonexistent, costly, not effective, not offered or bothersome. Prostate cancer treatment often results in fatigue, depression, isolation and sometimes suicide. Billions of dollars are profited from ED drug and other ED products, catheters, pads and diapers, drugs for depression or pain or insomnia or incontinence, additional treatments and surgeries for side effects. Also treatments for the multiple and bizarre side effects from hormone ADT therapy (chemical castration) is sometimes required.

Depression in prostate cancer patients is common, about 27% at 5 years (per some studies) and for advanced prostate cancer patient's depression is even higher. Prostate cancer patients are at an increased risk of suicide.

Almost all prostate cancer treatments usually result in erectile dysfunction. Loss of libido estimated at about 45%. Biopsies can sometimes also cause temporary or permanent ED. Often claims of prompt effective treatment for ED if it occurs after treatment are sometimes misleading. Statistics for ED percentages from treatment are usually quoted after treatment with Viagra, muse or other ED treatments, therefore most statistics are very misleading. ED rated at 5 years may be as high as 50% to 80% or higher for most treatments. ED rated at 15 years may be as high as 90% or higher for most treatments. For cryotherapy, ED rates are almost 100%. The cost for ED drugs like Levitra, Cialis, Viagra and Muse are kept very expensive by drug companies, about $9 to $45 per 1 pill. Most insurance companies will not pay for ED drugs or treatment. The patent for Viagra should have already expired in the USA. Less expensive generic drugs are usually unavailable in the US. Viagra should have already become available in a generic (in the USA) form for about $1 to $2 a pill. This is further exploitation by the drug companies of men in general. Men are further exploited by counterfeit mail order ED drug sales. ED drugs are not always effective and may have side effects. ED treatments can also be embarrassing, not offered, not practical, painful, expensive/not covered by insurance.

In conclusion: Prostate cancer patients are sometimes elderly and exploited for profit (per documented studies and proof). A blind biopsy is unsafe and newer test methods should be used. The treatments offered have horrible side effects. Some doctors are treating patients with low risk cancer or advanced age when monitoring is often a better option. Patience with low risk cancer or advanced age should often be offered "watchful waiting" or "active surveillance" instead of treatment. Aftercare for long term side effects is frequently ineffective, expensive, not offered, degrading or nonexistent. Prostate cancer patients are seldom told about chronic fatigue and the true risk of side effects are usually understated. Modern medicine often fails and victimizes prostate cancer patients.

If a patient has intermediate or high risk prostate cancer and does not have advanced age he may need treatment. He should look into other advanced treatments if available. Also he should try and avoid Hormone therapy if possible because of the multiple side effects. If advanced treatments are not available a 5 day SBRT radiation treatment may be considered (In my opinion, it could be the best of the bad choices). SBRT seems to be fast, least invasive or traumatic. ED and fatigue is still a high long term risk. Radiation with Hormone therapy has a higher risk of long term fatigue.

A short version of my story: First I would like to say I live in the USA and Obamacare is not affordable for me. If we did purchase Obamacare, It would cost my wife and I about $1,400 a month. I was referred to an urologist by my family doctor after a high PSA. I will refer to the urologist as Doctor "A"; he used old testing technology (18 core blind biopsies), his medical assistant seemed to have a mental defect, exhibiting inappropriate laughter, arrogant and abusive behavior and was intent on inflicting psychological harm to me. Shortly after my Dr. "A" visits ended, his medical assistant was no longer employed at his office and no person in that office would refer to her employment or her existence. I was diagnosed with Prostate cancer by Dr. "A". I refused his surgery offer because of the eminent side effects and his unprofessional medical assistant behavior, so Dr. "A" referred me to Dr. "T". Dr. "T" was outside of my insurance network; however his office manager stated she was willing to work with my insurance, offered me a doctor consultation and would accept any insurance payment as a full payment. When I arrived in his office the waiting room was empty. Dr. "T" used older conventional technology, offered me over-treatment and unnecessary procedures and testes. One week after my consultation with Dr. "T" I received an $850 bill for the consultation, in conflict with what was agreed upon with his office manager. After a recommendation from a friend, I called Clinic "O" and met with the nurse. She offered me conventional treatments with a verbal guarantee of "no long term side effects". However the nurse could not answer any of my questions, lacked credibility and sounded like a used car salesmen. Most of these office visits caused me multiple problems with offices workers processing paperwork for tests, insurance forms and billing, etc. Two of these doctors offered me an unnecessary bone scan. Two of these doctors recommended Hormone therapy (ADT Therapy. After I absolutely and utterly refused hormone therapy both doctors admitted it probably would not help me in the final outcome. Having no advance treatments (laser, etc) available to me at that time, I decided on treatment with Dr. "K", he seemed honest and could answer my questions and had new equipment. Before my treatment could start I was referred to "W" lab for an MRI. "W" lab had a trainee assisting and it took over 2 hours to complete my MRI. 2 days later after receiving a copy of my MRI report, I examined the MRI report; it had my name and some other patient history information. I wasted 2 more days verifying it was the correct MRI of me and not some other prostate patient MRI before my treatment could start. Dr. "K" and his staff seemed competent and I did receive treatment from Dr. "K". I did have a relatively fast and completely noninvasive treatment (SBRT), resulting in months of fatigue and some short term side effects. At this time I am doing well, however I'm not sure what the future will bring? I also no longer trust modern medicine, doctors, nurses, etc. Modern medicine seems to be more of a gamble then a science. I have wasted hundreds of hours and thousands of dollars. I feel modern medicine has abused and failed me due to the lack of guidelines and regulation, still approved obsolete technology, good unapproved treatments, exploitation, greed, apathy and incompetence. Hindsight is 20/20. If I could do it over again, I would also consider no PSA testing and treatment or traveling for advanced treatments from a competent provider if practical and available. I believe if I did take the two doctors recommendations and received hormone therapy in addition to the any other therapy my life would have been severely impacted for years or permanently. I also believe I probably should have had no PSA testing or treatment.

"Do no harm", unless you can get away with it: I was harmed physically and verbally by Dr. "A" 18 core blind biopsy and verbally abused by his medical assistant. I was potentially exploited and financially harmed by Dr. "T" and offered unnecessary testing and overtreatment. Clinic "O" nurse attempted to misinform and deceive me about the treatment outcome and side effects. I was harmed by "W" lab by mistakes and incompetence. I did also have numerous other billing and paperwork problems probably due to mistakes and laziness.

If any man lives long enough it is very likely he will have a prostate problem, low testosterones or some form of sexual dysfunction. In my opinion modern medicine often has been exploitive, abusive and has provided substandard care for older men in general due to all of the explanation given in this text.

Protect yourself: Do not let the sterile, friendly and professional environment of a doctor's office deture you from protecting yourself from over-treatment or any unnecessary life changing tests and treatments. If you are concerned about misuse or privacy issues, refuse to fill out EPIC questioners and limit the information given to relevant information only. If you have a high PSA or prostate cancer, educate yourself. A patient should be extremely skeptical if exaggerated claims are made about minimal long term side effects from conventional treatments or blind biopsies. Bring someone educated or astute with you to your consultations and appointments. Avoid doctors that are mostly profit motivated. Do not submit to a blind biopsy if other options are available. Get a second or third opinion if you are being offered treatment with low risk cancer or have advanced age. Learn about all your treatment options, testing and side effects. Verify everything you are told. Under the HIPAA law you are entitle to a copy of all your medical records and bills. Be very cautious if you are ever refused a copy of your records; demand a copy of your records and a reason for any denial and seek other advice. Get a copy and keep a file of your test results, biopsy report-Gleason score, PSA, MRI report, treatment plan, bills, insurance payouts, etc. Carefully monitor your PSA. Expect a temporary increase (for weeks or months) in PSA after some procedures. Verify the accuracy of paperwork. If treatment is necessary talk to your doctor in advance about side effect management, chronic fatigue, ED, Etc. Contact a good prostate cancer support without a conflict of interest.

One more time: Some studies have verified more deaths caused from prostate cancer testing and treatment than from prostate cancer itself.

The above text may probably anger and upset some people for the following reasons: Medical professionals may not want anything to change or want to believe no harm is being done or want patients to know better testing and treatment should be available, differences in opinions, patients may not want to believe they could have gotten a better treatment, no testing or treatment. Or some other reasons?

Strict guidelines for prostate cancer testing and treatment need to be created and enforced because of the extensive and documented abuses of prostate cancer patients:

  1. Blind biopsies should be banned.
  2. Strict standards and guidelines for testing and treatment need to be created.
  3. Full mandatory industry standard disclosure forms need to be created for tests and treatment to include realistic risk factors.
  4. Newer testing and treatments need to be approved and created.
  5. Dignity, privacy and confidentiality need to be standardized and enforced in addition to the HIPAA laws.
  6. Aftercare needs to be available and be standardized.
  7. The cost for drugs needs to be regulated to end financial exploitation by drug companies.
  8. Medical workers should be identifiable and required to wear name tags, with first and last names.

It is unlikely any of the above recommendations will be implemented unless prostate cancer affected a larger percent of the population or enough important people are affected. Prostate cancer patients must protect themselves, as the only alternative!

Clarification: The intent of this document is not to imply all doctors are dishonest or to condemn all medical providers. The intent is to educate men and prostate cancer patients of the consequences and dangers that may await them so they can take appropriate action and to inform patients of real world, typical or worst case scenarios. I have also tried to include every possible scenario a prostate cancer patient should be cautious of. Would a health care provider harm someone for profit or by accident or some other reason? Yes, absolutely! We just don't know who or what percent. Are some doctors and nurses outstanding? Yes! Spelling errors, differences in opinion, variations in semantics do not invalidate this document or its intent. The information in this document is a sum of my experience, other patient's experiences and hundreds of videos, documents, books, conversations, clinical trial, studies, articles, etc.

Disclaimer: I have no conflict of interest. I have no affiliation with any support group or other organizations. I am not a doctor. I do not prevent, treat, diagnose, cure or advise on medical matters. The information above is for educational purposes only. If you need treatment or medical advice, consult a competent and trustworthy medical doctor.

In order to avoid any further criticism, reprisals, abuse and exploitation, I will remain Anonymous.

Anonymous


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