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 BRONZE 
This member is a YANA Mentor This is his Country or State Flag

Tony P and Trena live in Maryland, USA. He was 58 when he was diagnosed in May, 2016. His initial PSA was 4.40 ng/ml, his Gleason Score was 7, and he was staged T2b. His choice of treatment was Surgery (Retropubic Prostatectomy). Here is his story.

Annual physical PSA 4.4 and doc noticed a lump on DRE. The way he was frowning I thought, this isn't good. Prior PSA 3.2 and doc felt enlargement, and 2.4 2 yrs ago. Got the bad news from urologist on Friday the 13th. Biopsy was 7/12 positive left side concentrated at apex with 2 cores 90%, remainder a lot less. All were 3+4 except one 4+3. Advised 3/4 months to start treatment. MRI indicated all still in prostate. Within 10 days I had appointments with radiation oncologist and surgeon. Both of them and urologist recommended surgery. I'm in good shape, runner for 40 yrs 5'9" 165. No meds for anything never spent a night in a hospital. Only issue was a hernia 5 yrs ago. No family PC. Confident could beat the cancer. Main concerns were the ED and incontinence (of course, I had no clue of those side effects prior to May 13). Scheduled the surgery for 6/28 at J Hopkins but decided for more opinions and research. Knew 3 guys who had PC before. Now I know 20. It's a fraternity! I spoke to all. Also got 2nd medical opinions from MD Anderson in Houston and local hospital that specialized in Cyberknife. All recommended surgery. Surgeon knows my pastor, has done 500 procedures so both were reassuring. He did stress only 1 nerve could be spared. Ouch! ED stress level rose. Surgery went well, except bladder cramps one night hurt like Hell. Out in 2 days.

UPDATED

July 2016

Two weeks out from surgery. Feeling pretty good with the most energy to date. Walking the dog up to 3 blocks now. Only got up once last night to pee. No major accidents thus far. Urine volume increasing. Was wearing depends several days after catheter but only 1 or 2 light pads the last few days. In the month prior to surgery, I did lots of Kegels and that must have helped. Definitely recommend the before surgery approach, including stopping flow. Feel a little leakage sometimes when getting out of a chair, certain movements, etc. but overall I'm pretty pleased with continence management thus far! Pelvic muscles are a bit sore. Tried 1st 100 mg Viagra. With assistance from spouse on a scale of 1-10 maybe a 2.5. Not much, but something for initial effort. With only 1 nerve, this might be all to expect for now.

UPDATED

September 2016

1st post surgery 3 month PSA undetectable. Only time in my life I ever wanted to be a ZERO! Incontinence has improved to now I'm wearing no pads during the normal workday. Hooray! Try to stay ahead of any accidents by going to pee at the 1st urge. Terrific improvement - can hold it up to 2 hrs. Still cannot run/workout due to stress incontinence. As for ED, there's little action even with hi test 100mg Viagra. Will keep trying.

UPDATED

October 2016

After 4 months and 1 nerve remaining, the little blue pill finally worked! Estimated a 7 out of 10 score. Usable. It's a sloooooow recovery. I am blessed and thankful.

UPDATED

March 2017

Last update 5 months ago finally saw some life with ED. Unfortunately, haven't come close to that since. Losing confidence despite knowing it's a 2 year process. Completed Hopkins survey last week. ED is severe. No, I'm not satisfied with that. Pills don't work and I broke the tab that controls air on my VED. Next Uro visit in 2 weeks will demand to try injections (Ouch)! The thought of it is painful, yet I'm game, as I'm feeling a loss of intimacy with my wife.

Pee management is OK. Greatest issue is running. Been doing it over 40 years. It's very difficult to control flow/dribbling now after ANY liquid. Thus, can't work out as before and suspect pre-diabetes is getting worse.

This journey has aged me considerably. before June 2016 I looked younger than my age. Not anymore. Last PSA in December was <0.1. That remains a blessing. Next one scheduled for Friday.

Tony's e-mail address is: powelltony1@gmail.com


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