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This member is a YANA Mentor This is his Country or State Flag

Del Mancuso and Pat live in North Carolina, USA. He was 71 when he was diagnosed in August, 2009. His initial PSA was 6.20 ng/ml, his Gleason Score was 7, and he was staged T2a. His initial treatment choice was External Beam Radiation+ADT and his current treatment choice is Chemotherapy (Zytiga (Abiraterone)). Here is his story.

After being diagnosed on 26 August 2009 PSA 6.2 Free PSA 13.7 Gleason 7(4-3), biopsy showed tumor in 4 out of 12 cores, located in right lobe (stage T2a) the VA set an appointment for today (6 Oct). The Urology Surgeon was pushing open prostatectomy, selling the fact that I was in very good health for my age 71 (72 in November) Also that I would have radiation as a back up, if the cancer returned after surgery.

When he realized I wasn't in favor of surgery-he backed off. Also I pointed to the fact I had two double hernia operations in the past and that could result in a lot of scar tissue, making prostate surgery more complicated. I had many questions with regard to Brachytherapy in conjunction with different types of radiation. He was unable or unwilling to address these issues and set up a consult with the VA radiologists. I requested a bone scan, to insure the cancer cells had not leaked in surrounding region. He said in my case a bone scan is unwarranted and countered with a pelvic scan- the scan & radiology consult are being scheduled.

My question is: Am I on the right track by discarding surgery and holding out for radiology options?

I would sincerely appreciate hearing any advise with regard to my case.

Later:

Tues (October 6, 2009) I met with a VA Urology Surgeon, he offered surgery or watchful waiting - I rejected both.

Today (October 9, 2009) I met with a VA Radiation Oncologist. A new PSA was taken -down from 6.2 (August 25, 2009) to 5.6 today. After much discussion of the different types and combinations of radiation therapy, we decided on a plan that worked around a cruise we have scheduled for the end of November to mid December.

My treatment will be IMRT (Intensity-Modulated Radiation Therapy), which the VA is farming out to 21st Century Oncology to allow me to receive treatment in my hometown. As a side note, the VA was willing to pay for out of town lodging, in the event I selected treatments, that required living away from home. I will meet with 21st Century Oncology on 22 Oct to discuss a treatment schedule-plan.

Today the VA gave me an injection Zoladex 10.8 mg, The purpose of the injection is to suppress the cancer cells, until I start the IMRT after the travel. The VA Urologist scheduled a pelvic CT scan for 9 November. The Radiation guy said it was optional if I wanted to keep an appointment for the scan, if it made me "feel good" to have it. Since I really wasn't certain how to respond, I left scan pending, at least, until the appointment with 21st Century.

I am very comfortable with having the IMRT. Based on what is known here about my case, is this considered a good plan? Thanks for any comments on this.

Del

Later: Additional research revealed a more advanced radiation therapy than I had previous opted for. I switched from the IMRT (Intensity Modulated Radiation Therapy) to the more advanced IGRT (Image Guided Radiation Therapy). I will be treated by the same doctor with 21st Century Oncology, only in a town some 40 miles from our home- small trade off for the more advanced technology.

I will actually begin the treatments end of Dec '09/Jan '10 when we return from our travel. The Zoladex will bridge the time gap.

UPDATED

March 2010

We enjoyed a great 12 night cruise and started IGRT radiation treaments 28 Dec 2009. Completed the 41st & final treatment on 26 Feb 2010.

My follow up appointment to the Radiation Oncologist on 12 Mar 2010 indicated no side effects or damage attributed to the radiation treatments. Every day during the treatment period, I continued with my usual routine of working out at my health club (1 hr cardio and 1 hr strength training) 7 days per week. I would say less than 5% of the time, I felt I had to push myself to finish my routine.

My wish, for every guy with prostate cancer: to experience such an uneventful treatment experience. I am scheduled to have my first PSA test 11 May 2010. I have been cautioned not to expect a significant drop to below 1% for a year after the treatments ended. In the interim, I will forget I had ever heard the words prostate cancer associated with me and I will resume enjoying life as I always have.

UPDATED

June 2010

After completing 41 IGRT radiation treatment at the end of February 2010, my first 90 day follow up visit to the Oncologist was scheduled for 12 May 2010.

My PSA went from 6.2 at diagnosis to 0.05 No further Zoladex injections were ordered, beyond the original one. The follow up will be a PSA every 6 months.

The treatment produced no side effects, with the exception of occasionally being fatigued, causing me to shorten my daily two hour work out at the my health club, along with the "old guy" stuff that was there before the treatment.

One last comment - this treatment proved to be right for me, it doesn't mean it is right for you. If you are newly diagnosed - explore every treatment option AS IT RELATES TO YOUR CASE. When you feel you have exhausted all of the resources available to you, independently make your own decision. Not to be influenced by your spouse, friends and especially not by any medical professional. The treatment decision will then be yours and only yours to own.

My sincere wishes are, whatever, the treatment selected- your out come be at least as good as mine and better.

UPDATED

August 2010

I am happy to report my latest PSA is now 0.03 - 6 months out from the end of radiation.

UPDATED

January 2012

Since my PSA data news has been holding I tend to forget about keeping you up dated, for this my apologies. Occasionally I do get an inquiry from someone in your data bank. Here is the good news since reporting Aug 2010:

Dec 2010 - 0.43
Jun 2011- 0.62
Oct 2011 - 0.63

My next scheduled PSA test at the VA will be in Feb 2012. I will report the updated score at that time. I believe you have the best reference data bank for prostate cancer patients and you should be very proud of what you have accomplished.

The very best of health and success in 2012

Del Mancuso

UPDATED

February 2012

As I promised, here is an update as of Feb 2012.

The PSA reading is 0.70 up slightly from 0.63 in Oct 2011.

Wishing you my best- Del Mancuso.

UPDATED

June 2012

My 6 Jun 2012 follow up with my VA Oncologist revealed a PSA of 0.86 up from 0.70 a year ago and 0.30 following radiation treatments. He advised a 6 month follow up vs 1 year. If the trend continues he suggest an injection every three month. My hope is that all of you guys out there having great successes as you continue your journey with prostate cancer.

UPDATED

June 2013

Since my last update my PSA;: 06/2012 .86, 12/2012 1.19, 05/2013 1.88 my next PSA reading will be Nov 2013. The VA continues to be my care provider. My VA Oncologist recommended a treatment of Zoladex injections in Dec 2012 and again May 2013. He explained "radiation failure" is define when the PSA; is 2% + the lowest PSA; following radiation (in my case 2.3). At age 75, I live a very energenic life style 2- 3 hrs at the gym everyday, hiking mountain trails and extensive travel plans. I have elected to postpone any treatment with the usual side effects, at this time, pending my next PSA; reading. Quality of Life, is priority one for me.

UPDATED

February 2014

I continue to see my VA Oncologist. Since Jun 2013 my PSA; has been climbing (10/13 2.70; 12/13 3.5 & 2/14 3.9). During this period I had decided to nothing. The new plan is to have a bone scan & pelvic CT to determine my next course of action. Suggestions were Zoladex treatment or freezing the prostate. Also the PSA; will be monitored every 2 or 3 months.

UPDATED

June 2014

I have had the scans - good news no cancer found in the bones! Not so good news- PSA; is now 7.0 from 3.9 in the last 90 days. Next I will have biopsy to determine if the cancer has returned to the prostate. If this is the case, I will consider cryo therapy (freezing the prostate) - a prostatectomy, as it has always been with me, not a treatment option. If cancer is not found in the prostate and the PSA; continues to rise at next PSA; is scheduled test (27 Aug 2014) ADT (Zoladex) will be an option treatment for consideration. On a personal note (if it is permitted): Whatever your opinion may be with regard to the VA system in the USA, I have great confidence in the continuing this journey under the care of VA (mine is Asheville, NC rated #5 out of 139). As everyone's experience is different with prostate cancer, so will their treatment at the VA or any other treatment facility.

UPDATED

August 2014

Since my last entry, my PSA; has increased from 7.0 to 8.8 in 90 days. There was a "mix up", the appointment to see a Urologist about a biopsy- never happened. Now rescheduled for 9 Sept 2014. I still maintain, my same active life style. Next Oncologist appointment is Nov 2014. Will update when I have new information, 'til then make today the best day of your life and make tomorrow even better!

UPDATED

October 2014

I had my 3rd prostate biopsy. A "small amount of cancer" was found in the left side of the prostate. I have an appointment with the Urologist on 21 Oct, where these results and my future options will be discussed. I am eager to see the PSA; reading at that time. I also have a follow up appointment with my Oncologist on 2 Nov as a follow up. Until my next update, as we used say in the Navy- "Smooth sailing to Safe Harbors"

UPDATED

October 2014

Discussed the biopsy results with the VA Urologist. A small amount of cancer cells are present in the prostate and PSA; increased from 8.8 to 13.6 in last 60 days. This indicates the surrounding area of the seminal vesicles, should be explored. If cancer cells are present, the recommended treatment would be cryotherapy, to eradicate the cancer. The VA is setting up a referral to Duke Medical, Durham, NC for this procedure. Other options were "watchful waiting" (my call) or ADT (androgen deprivation therapy) considered to be "over kill" at this point.

UPDATED

December 2014

MRI was largely inconclusive. The appointment with my VA Oncologist, revealed another increased PSA; going from 13.6 to 17.6 in less than 45 days. In few days I will have a double biopsy (prostate & seminal vesicles) at Duke. The biopsy results will determine if cryotherapy is the next course of action or perhaps there will be new twist on the road of this journey. Until my next post, everybody make each new day - the day possible!

UPDATED

February 2015

My PSA; is now at 22.9 from 17.6 recorded just 60 days ago. I continue to be seen at Duke University, Durham,NC (funded by the VA, Asheville, NC. A biopsy was preformed on the prostate & seminal vesicles. 16 cores were extracted- 3 cores (in close proximity to each other) all 3 had a Gleason score of 7. None of seminal cores indicate cancer to be present. The cancer being contained in the prostate, made me a good candidate for cryo surgery. To this point, my age 77, I have been able to enjoy my lifestyle choices (going to the gym 2 hrs per day - 7 days per wk and doing some hiking on our mountain trails) without interruption. The PSA has been monitored every 3-6 months, since radiation failure Dec 2012, employing "watchful waiting". The rapidly rising PSA called for a more proactive treatment. Focal cryo surgery seemed to be the next step. The process employs inserting hollow rods, into the prostate directly to the cancer location. Liquid is passed through the rods and frozen to form crystals that destroy the cancer. The rods are inserted through the perineum (area between the anus & scrotum) under a general anesthetic. This cryotherapy can be used as a "first time" treatment, if the cancer is contained in the prostate. It can also be used, as in my case, after radiation failure has occurred. Tues 10 Feb 2015 I had this procedure at Duke Unv Hosp. by Dr James T. Polascik, MD. A key to the success of cryo is the experience of the doctor. Dr Polascik, is well qualified having background at John Hopkins. I have a catheter bag in place until 25 Feb. Testing the success of this procedure in removing the major amount of cancer, will be in 3 months, if the PSA is significantly down. If the PSA; is not down, the next step would be resecting the pelvic lymph system. I will report the findings in 3 month.

UPDATED

March 2015

A quick update - Weather prevented having the catheter being removed as scheduled, on 3 March, three weeks after the cryosurgery, the catheter was finally removed, to reveal that I am now experiencing incontinence. A special note to anyone considering cryo surgery: be award if you had radiation as a prior treatment (as I had) the risk for incontinence is 10%. If no previous radiation the risk reduces to 3%. I will try to regain my bladder control with the Kegel exercises, otherwise this comes with the territory of managing the cancer.

UPDATED

March 2015

Post-op apt. at Duke Unv Cancer Ctr- no problems, with the exception the continuing incontinence. Working at correcting that "bump in the road" New information: to determine if the major portion of the cancer was located in the prostate and was destroyed - the PSA must be at .5 or below not 0.6 or higher down from 22.9 - I will have this information on 19 May '15, my next VA appointment.

UPDATED

May 2015

Didn't get 0.5 PSA reading I had hoped for after the Focal Cryo Surgery, the PSA went from 22.9 in Feb 2015 to the current PSA of 37.7! My doctors at the VA in consultation with my doctors at Duke University Cancer Center presented a plan that I can buy into 100%. A new bone and Ct scan is scheduled 4 Jun along with a 6 month injection of Lupron with continued PSA monitoring. Another positive is that the Docs are no longer considering any surgery such as removal of the pelvic lymph nodes. The "bump in the road" incontinence is still present, looking for a positive outcome, as I have somewhat learned to manage the condition, making my day to day life more enjoyable. No matter what state your condition is in, it is always good to have something on your horizon - I have two: my Navy Destroyer's reunion in Sept '15 to reunite with some of 1950's shipmates and a two week Caribbean with friends in Jan '16. Remember:

There are always "blue skies" behind the darkest of clouds!

UPDATED

June 2015

Results of the scans indicate cancer in the spine and lymph nodes. 27 Aug 2015 we will have another PSA;, which will indicate if the Lupron (ADT2) is doing its job- if not- what is next? The Urologist's response was chemo - my response was "chemo is off the table, as I will not consider it an option for me". His response, if necessary we can consider other options - OK Doc - I get it "stay positive"! On that note - there is steady progress being made on the incontinence problem - I'll take success where I can find it! Make today the best day of your life - more important - make tomorrow even better!

UPDATED

August 2015

Finally some good news! Having had my first Lupron/Elgar (ADT2) end of May 2015 I had the first my first PSA going from 37.7 down to UNDETECTABLE!! The next PSA; and ADT treatment is scheduled for 3 Dec 2015. The incontinence side effect from the Cryo is now under control. The prayers of the many, who have supported me on this journey, have been answered, for their support I will be ever thankful. Wherever you are in your PC journey, know if you have today - you have hope - for hopes lives in your all tomorrows.

UPDATED

February 2016

My latest update - Dec 2015 I had my second injection of Lupron/Elgar (ADT2). PSA as of 8 Feb 2016 is still at the undetectable level. Indicating that the ADT is continuing to contain the Stage-4 cancer (spine & lymphatic system), not without consequences. A condition called Osteopenia causing the bones to become very brittle. Now taking 5,000 units of vitamin D daily. Further treatment being considered, a yearly infusion of zoledronic acid. Since I don't tolerate infusion very well, this type treatment will not be decided until April 2016. I also have spinal stenosis and Parkinson's with certain interactions. What is remarkable, none of this has diminished my ability to continue to maintain my "quality of life". At age 78 I continue to travel: just returned from a 2 week Caribbean cruise with an extended 2 week stay in Florida; Sept 2015 travel to San Diego to my Navy ship's reunion and I am looking forward to this year's reunion in Oct in Norfolk. Now back home, I have resumed my routine of working out at my local health club 7 days per week. No matter where you find yourself on this journey - Never allow your life to be defined by cancer! Live life on your terms!

UPDATED

March 2016

PSA again still undetectable! Bladder cancer suspected. Tests pending in May to confirm the new diagnosis. Continuing to enjoy my active life style. Until my next update - make sure you are living life on your terms - keeping negatives and negative people out of your life.

UPDATED

August 2016

Diagnostic tests verified, I Do Not have bladder cancer, as previously suspected. 17 July 2016 I received another 6 month treatment of Lupron-Elgar (this is my 4th treatment). My PSA remains undetectable, as previously reported. My minor conditions (Parkinson's, spinal stenosis & osteopena) are still present showing no changes. Thanking God, I am able continue my active lifestyle: gym (6 days per wk), yard work, hiking & traveling to another of my Navy ship's reunion (Oct'16 time in Norfolk, VA). Next PSA; & Lupron scheduled for 17 Jan 2017. I am so positive PSA will remain undetectable. I booked a cruise for March 2017, with friends, we will all be turning 80 during 2017. Live the life of your choosing - not the life cancer chooses for you. With a cure, one day, cancer will be dead not you!

UPDATED

January 2017

I received my 4th 6-month Lupron (Eligard) treatment at the VA. My PSA remains undetectable (down from 37.7). I cut my gym workout back to 6 days (even God rested on the 7th day). I did not cut back on the time (1 hour on the tread mill and on the better part of the 2nd hour on other equipment). Since my last post, I traveled to Norfolk,VA to attend my Navy Destroyer's 25th reunion. The cruise, set for March 2017 is still a go. I plan to attend my ship's next reunion in Oct 2017. I will be turning 80 in Nov. I always like to keep an event on the horizon. My next Lupron/Eligard scheduled for July 2017. All said and done, I feel very thankful and grateful to God for allowing me to live life on my terms. As we all travel this prostate road..... the operative word is "Together- no one is traveling this road alone". The second best thing is we are still "traveling!!". Until my next post- if you make Today better than Yesterday.....just imagine what your tomorrows will be!

UPDATED

November 2017

My appointment at the VA on 17 July 2017 my PSA reading again was <0% (as it has been since May 2015 down from 37.7). I had the expectation of receiving another 6 month's Lupron/Elgard (Leuprolide 45mg/6M LA- ADT2 [Androgin Depression Therapy surppresion]) treatment. Here after referred to L/E. I was told, I had tolerated the L/E treatment well, during the last couple of year, another plus factor is - I will reach age 80 (Nov 2017). The VA position is to now discontinue L/E and monitor with a PSA every 6 months, until the PSA rises to 10-15% at which time, the latest treatment option will be offered. I countered with: (1) a PSA every 3 months (2)OK! No L/E for 6 months and then a L/E (Jan 2018) and again no L/E 6 months (Jul 2018) i.e. L/E on - off every 6 months based on the PSA reading (my call). I obtained a second opinion from a non-VA doctor. This is my current update 4 Nov 2017): On 17 Oct 2017 PSA remained <.0%. Another PSA on 17 Jan 2018, if PSA is <4.5% I will continue without the L/E- if the PSA is higher, I will resume L/E or whatever the appropriate ADT is available at that time. I feel secured my choice of this plan of treatment. Once YOU make YOUR select a treatment plan - Own it! Put it away in a drawer and get on with the business of living life. Until Jan 2018 - God's riches blessing on all of brothers in this community and all who support them.

UPDATED

January 2018

PSA on 1 Dec 2017 was still <0.1 with no Lupron - Elgard treatment since 2 Dec 2016. A new PSA reading of 0.1 taken for 17 Jan 2018 for a VA follow up appointment. The VA statistics indicate, once the PSA begins to rise, the average is 18 month before it is necessary to resume treatment (when PSA reaches 7.0 to 10.0). To continue without treatment, the VA's policy is: a yearly follow up appointment with a PSA. This was not acceptable to me. A compromise treatment plan was agreed to: a PSA every 90 days with a follow up a appointment every 6 months (next follow up 17 July 2018). Now at age 80, I still do 1 hour on the treadmill at the gym, 6 days per week- along with a few other workout machines (now limited by my osteoporosis and spinal stenosis- I also have Parkinson's which will limit my Mountain trail hiking this summer. All things considered- I am pretty fortunate guy! I get to, for the most part, live life on my terms. I am looking forward to another of my Navy ship's reunion in Sep 2018- this time I will be traveling to Salt Lake, Utah. As you travel this journey, NO ONE IS BETTER QUALIFIED TO MAKE THE IMPORTANT DECISIONS....... THAN ARE YOU!! Never allow yourself to be defined by "Prostate Cancer" - You are a guy, who happens to have been diagnosed to have prostate cancer! Until my next post, to all my fellow travelers in this community- I wish you best of everything. Del

UPDATED

June 2018

Since my last post, I continue to remain off the Lupron/Elgard. Have been getting a PSA every 90 days. Jan 2018 was the first detectable PSA at 0.1 next PSA Apr 2018 0.3. My next PSA is scheduled for Jul 2018, followed by a 4th reading Oct 2018. With 4 readings, it will allow me to chart the data, to determine if the PSA is increasing at fixed rate. The quality of life has improved without the side effects of the medication, some of which I didn't notice until we stopped the Lupron. Life at this moment is very good, allowing me to live life, pretty much on my terms and for this I give God the Glory and the Thanks. My fellow brothers on this journey until my next post.....stay positive by living the best minutes in each day to the fullest.

UPDATED

November 2018

9 Nov 2018- I failed to update following my VA appointment on 19 July. A new plan of action was decided on. PSA will now be done every 6 months vs every 3 months. Next PSA scheduled on 22 Jan 2019. The Elgar/Lupron will continue to be withheld, until the slow rising PSA is in the 10-20 range. On a personal note: Staying off the Elgar/Lupron has not been with "real world" useful benefits. A real surge in energy, allowing to me my 6 day gym routine and my many other activities surviving quite well on 3-4 hours sleep per night. The puffy body fat is gone reducing my waist size from 38 to 32 and my 160+ lbs down to 135 - 140. At the present time- life is all good and I am celebrating that, fully aware my condition could deteriorate at any unknown time. I'll deal with that, when that time comes, at 81 I can't wasting time withany negative thinking. Where ever you are on this journey, find the positives and celebrate them. I'll try to update promptly after 22 Jan VA appointment.

UPDATED

January 2019

My PSA is 4.4, up from 2.9 just 60 days ago. Due to the rapid rate of increase in the PSA, I will have a PSA taken every 90 days (7 May 2019). My revised treatment plan: When PSA is between 10.0 & 20.0, Lupron injections will be resumed. Treatment will include Casodex added to the Lupron. Until that time, I will continue to enjoy my day to day life that continues to be at full energy and absent the adverse side conditions of Lupron. If the next PSA is below 15, I will argue for another 90 days with out treatment. My objective is to delay the resumption of treatment as long as possible. To all of you on this journey: A Blessing from my Navy time (1955-58) on the USS Hamner (DD718)

"Fair Winds and Following Seas"
Image result for USS Hamner DD-718

UPDATED

February 2020

I apologize for not posting in a timely manner. My last post was Jan 2019 PSA was 4.4 Elgard/Lupron treatment continued to be withheld since Dec 2016. PSA begin to rise: Apr 2019 is was 10.0. Aug 2019 the pas reached 18.9 Eligard/Lupron treatment was resumed- resulting in a PSA of 1.0 Oct 2019 by Nov 2019 the Eligar/Lupron brought the PSA down to .07 at last reading. Next PSA is scheduled for 25 Feb 2020, at which time I will have another Eligard/Lupron treatment. There have been no noticeable side affects.

Due to the cancer having metastasized in the bones and lymphatic systems, the VA's course of care and treatment included CT and other scans both in May 2019 & Jan 2020. I thought this indicated a sign of pretty good medicine, on the side of the VA. by not allowing long time periods between following up on the areas of concern. I urge anyone with metastasized PC, insure their health provider, regularly monitor their condition with scans. Although, through the VA's "MyHealtheVet" portal- the results are shown, it is not easy for the medically untrained eye, to understand the results. I need to know if any deterioration is due to the cancer activating or the aging process or both. I will be looking for the answer during my next VA appointment 25 Feb 2020.

A couple of factors have impacted my life, since my last post. The tremors on my left side have increased, caused by my Parkinson's- no other symptoms from the Parkinson's. I am in the third year, as my wife, Pat's, principal care giver as we share her journey with Alzheimer's. We have managed to live as near a normal life as is possible, as we approach 57 years of married life in May. I was able to attend my Navy ship's reunion this last Sept in DC and looking forward to the Sep 2020 reunion in Seattle. We spent 3 weeks of the Christmas Holidays with our daughter in Florida. At age 82, I still maintain my gym membership and with the aid of Pat's walker, we manage to walk 2 miles along the Little Tennessee River, in our town. What ever journey you may be on: LIFE CAN BE GOOD.... IF.... you Recognize and Celebrate the good moments and Deal Quickly with the Not So Good Ones" God's riches blessings to all of us who are not in the RIP category.

UPDATED

February 2020

My last post, was pretty positive and justified, in light, of my knowledge at the time. The PSA dropping from 18.9 down to .07 indicated a reason for celebration,not so! Not included in my last post, is the less than jubilant enthusiasm, that was displayed by my young Urologist. At the time, I didn't understand his reaction, so any reference to his emotions was wrongfully (on my part) omitted. My current PSA is now at 1.0- considered an "insignificant increase" … not so! When Lupron Elgard has been resumed, the expectation is that the PSA will be at the "nondetectable" level- it is the direction and not the rate of increase that matters, as a restart treatment. Anything higher indicates the patient has reached what is termed the "tipping point". The euphemism for the often repeated phrase "Today the Lupron Elgar will defeat the Cancer

UPDATED

April 2021

Early 2020, my PSA began to increase rapidly (0-15.0). At this time the VA informed me that, the VA no longer had the ability to treat my prostate cancer. I was referred to Mission Cancer Center, Ashiville, N C. for a series of diagnotic procedures. Resulting from these tests, I was placed in the VA's Community Care Program and subsequntly placed under the care of Messino Cancer Center's Franklin NC branch (my town of residence). The treatment consisted of: Injection of Leuprolideacetate and Denosumab (every 60 days); Abiraterone Acetate (oral Chemo therapy) 1,000 mg taken daily with Prednisone 10mg. PSA dropped immediately and has remained at the undetectable level. I have experience no notiable side affects with this treatment. Aside from the stage 4 Prostate Cancer. My Parkinson's condition has staedly deteriorated (left side tremors, swallowing and walking). I remain, my wife, Pat's, sole care giver for her Alzhiemer's condition. With God's help, we are managing to continue on, as we come up on 58 years of marrige. Celebrating the "good times" as they come and quickly dealing with the "not so good times". It has been said "The Good Lord" never gives you more than you can handle- This is true "as long as you remember to use the mind He also gave. To every one traveling this road-never allow yourself to be defined by the illness (you are not the guy with postrate cancer) You are still the guy you have always been. Managing prostate cancer, is just another skill in your tool box.

UPDATED

October 2021

I have been on the daily 1,000 mg Abiratone with 1/2 20 mg Predisone daily. Lupon & Denosumb injection every 3 months-since Nov 2020. My Aug 2021 visit showed about 20 pound weight loss over the previous 90 days. This is an indicationthe treatment is no longer effective. I am happy to report, I've gain most of it back. As a "care taker" for my wife, she fell and was hospitalized for a 3 week period. It was thought I had spread myself too thin. I am happy to report by 12 Oct 2021, I have gained of the weight back. I have never registered a psa reading, since the starting the program. The doctor suggest going on a "holiday". Stopping the treatment, to test it's effectiveness of the treatment. I declined the doctor offer- he agreed. I thank God for what has been accomplished and God willing it will remain so. Remember, each morning you awake, you have been given the gift of a new day- be thankful to God and make it the Best day of your Life!

Del's e-mail address is: del1937 AT frontier.com (replace "AT" with "@")


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