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CSN lives in Pennsylvania, USA. He was 62 when he was diagnosed in December, 2006. His initial PSA was 4.20 ng/ml, his Gleason Score was 7, and he was staged T2b. His initial treatment choice was External Beam Radiation (Intensity Modulated) and his current treatment choice is None. Here is his story.

My situation is somewhat atypical since I have pre-existing pelvic nerve damage. However I followed the standard advice and read, talked to friends, and got several (3) medical opinions. All doctors recommended radiation because of my condition and I am almost done with IMRT (42 sessions, total dose 7560 cGy).

So far side effects are minimal and I have continued my usual daily activities, except for an hour in the day (40 minutes traveling to and from the hospital hospital and 20 minutes of Rx). I will keep you updated and welcome questions about IMRT.

UPDATED

December 2007

PSA has decreased from 4.7 to 2.7 at 6 months to 1.4 at one year. No symptoms but a slight increase in Bowel Movement frequency but that is slowly improving.

UPDATED

July 2008

PSA has decreased from 1.4 at one year to 0.90 at 18 months.

UPDATED

January 2009

PSA at 24 months increased slightly to 1.3 (false increase due to ejaculation 2 days prior to test) but resumed downward pace 3 months later to 0.6.

UPDATED

February 2010

Prior PSA 6 months ago was 0.8. Now it is 0.69. No therapy needed.

UPDATED

March 2011

PSA 0.58 ng/ml.

UPDATED

April 2012

PSA 6 months ago was 0.61. Now it is 0.68

UPDATED

July 2013

PSA 7/25/12 = 0.85; PSA 10/15/12 = 0.70; PSA 3/18/13 = 0.91 Then instituted nutritional regime of soy (nuts, milk, ice cream), selenium (Brazil nuts), anti-oxidants (pomegranate juice, kale). PSA 7/15/13 = 0.66

UPDATED

March 2014

Continue my nutritional therapy which consists of soy products, kale, pomegranate juice, Brazil nuts, and now tumaric. Discontinued saw palmetto on advice of nutritionist. Major agent is probably soy (nuts, chips, milk. ice cream) since this is most consumed.

UPDATED

March 2014

Current PSA 0.58

UPDATED

March 2015

PSA 0.83 Continue dietary regime as previously outlined, but have reduced soy by 50% because of mild GI symptoms (gas, frequent bowel movements).

UPDATED

April 2016

PSA's below 1 for last several years. Dietary regime same with addition of cooked mushrooms and less soy products.

UPDATED

November 2016

Completely without symptoms. PSA remains less than 1.0.

UPDATED

March 2018

Continuing with dietary treatment (as outlined previously). PSA remains stable below 1.0.

UPDATED

April 2019

Continue only dietary therapy as outlined prior.

UPDATED

October 2020

Since the PSA is rising (3/12/20-1.06, 10/5/20-1.12) will reinstitute nutritional therapy as noted in earlier posts.

UPDATED

June 2022

PSA as of April 22, 2022 is 1.7. Since this may be artificially elevated due to topical steroid use (beclomethazone) it will be repeated.

UPDATED

August 2022

Recent PSA of 1.2 has decreased from previous. As expected the elevation was a side effect of the heavy use of topical Beclomethazone.

CSN's e-mail address is: bcr1 AT yahoo.com (replace "AT" with "@")


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