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This member is a YANA Mentor This is his Country or State Flag

Terry Allen and Debbie live in Texas, USA. He was 64 when he was diagnosed in March, 2016. His initial PSA was 2.80 ng/ml, his Gleason Score was 6, and he was staged Unknown. His choice of treatment was Non-Invasive (Active Surveillance). Here is his story.

Good morning. I have been reading the YANA site for the past few months. My PSA has historically been around 1.7. Early this year it jumped to 2.8. My doctor referred me to a urologist. I have a very STRONG family history. Numerous DREs found nothing. The urologist did a biopsy which found a small trace of Gleason 6 in 1 of 12 samples. My next PSA was 1.7. I felt great. I just had the three month follow up PSA and it jumped to 5.2. I guess that if I said that I was afraid it would be an understatement. I am looking for advise and opinions. Also looking for someone to talk to. I am glad that I finally joined YANA.

UPDATED

November 2016

Time for an update. In January my PSA had jumped to 2.8 from historically around 1.7. My doctor was alarmed because of family history. The urologist did a 12 needle biopsy and found one core of 5% Gleason. My initial reaction was "get the darn thing out". However after speaking with a radiologist and a surgeon I settled on Active Surveillance. It was probably the surgeon who really swayed me. He told me that AS was what he would suggest. In April I had a follow up PSA and DRE. I call the DREs Poke and Hope. The doc pokes and I hope. The PSA was down to 1.7 and the DREs have always been negative. I felt great. I went in late August for my three month PSA. The number was 5.2. I was shocked and afraid. My appointment with the urologist was still two weeks away. When my appointment finally rolled around he did the DRE and fortunately it was negative. He told me, "cancer does not behave this way". It was about this time that I really started reaching out to some YANA members for support. I emailed Harry, Frank and Peter. Their stories seemed to be similar to mine and they all sounded extremely positive. They all responded within 24 hours and they all made me feel better. I reread their emails many times and have the messages filed in my YANA folder. My first lesson; the people on the YANA site are amazing. They are the greatest and my gratitude is endless

After the 5.2 PSA, the urologist wanted a two month follow up. In late September I went for the blood test for an October 4th appointment. PSA was down to 1.6 and the DRE was normal. Everything was great.

My second lesson is that PSA is a strange thing. I think that for certain men the PSA test is a must. High risk demographics, family history and us geezers should be checked. However it seems to be more of a "flag" than an absolute. This year alone mine has been 2.8, 1.7, 5.2 and 1.6. For me the DRE is the real deal if you have a good doctor.

My third lesson came from Harry. You have to know your body. He is so correct. Right before my blood test that came back with the 5.2 PSA Debbie and I had gone on two road trips and driven over 4500 miles within three weeks. She is convinced that I developed some type of infection.

I am still a rookie whe it comes to this whole thing. However, it is time that I started giving back. If I can help anyone with advice or support I will do my best. Thanks Harry, Frank and Peter. For now, all is good.

Terry's e-mail address is: terry6408@sbcglobal.net


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