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YANA - YOU ARE NOT ALONE NOW

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 BRONZE 
This is his Country or State Flag

Alan W lives in New York, USA. He was 69 when he was diagnosed in February, 2014. His initial PSA was 4.50 ng/ml, his Gleason Score was 7a, and he was staged Unknown. His choice of treatment was Surgery (Robotic Laparoscopic Prostatectomy). Here is his story.

Had robotic surgery with Dr. Ash Tewari at Mt Sinai Hospital NYC three days ago. April 10. Came home next day. Feeling OK but somewhat weak. This has been my first surgery so I have nothing to compare how I should be feeling. Am starting to eat but slowly and trying to walk regularly. Catheter is annoying but I am starting to figure out the night/day bag etc.

I guess my main concern is "am I on track" in recuperation. I know this was major surgery but just need some support. I have found this site helpful and will stay involved.

Thanks to you all

UPDATED

June 2015

Continued ED and working on this situation. No further urinary problems -- they resolved within three months of surgery.

I did have a rather rough 6-8 post surgery months -- high levels of anxiety about the future-- probably not much different from other men going through this.

No pain or discomfort from the surgery.. No further treatment recommended except PSA every 6 months.

However, I have developed peripheral neuropathy-- both legs which I have been told is not related to the prostate cancer or susequest surgery. I have been diagnosed with pre-diabetes due to elevated A1C.

Now taking Neurontin for the neuropathy and Metformin for the pre-diabetes.

As we all know, the entire prostate journey combined with getting older is no picnic. I do belong to Gilda's Club - a cancer support organization that has been very helpful. I do recommend support of some type for men who have gone through this, since life does not return to what it has been but establishes a "new normal".

UPDATED

July 2016

I have no pain in area. Occasional use of Viagra. However able to have an erection occasionally during sexual intercourse without meds. I have dry orgasms.

I have PSA checkups every six months and still get anxious starting about 2 days before the checkup.

I have not worn pads in about 2 years. The occasional "leakage" comes when I do somewhat heavy physical activities.

I am totally open about my experience if men ask me about the procedure and the after effects. I attend a prostate support at Gilda's Club routinely.

I have no second thoughts about the robotic surgery that I decided upon even though all of the treatment options available at that time were explained to me.

Alan's e-mail address is: awiener93@gmail.com


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