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  R.I.P.       GOLD    
This is his Country or State Flag

Merle Pinnekamp and Ellen lived in Maryland, USA. He was 50 when he was diagnosed in April, 2002. His initial PSA was 11.80 ng/ml, his Gleason Score was 9, and he was staged T1c. His choice of treatment was External Beam Radiation+ADT (Other). Here is his story.

Notes - will write treatment descriptions later. Just getting data collected(smiles)

No family history of either Prostate cancer and Kidney cancer. Most likely these 2 cancers occurred as a result of my 1977 testicular cancer. Testicular cancer occuring as a result of a non-disending right testical. The seminoma cancer treated with surgery and 30Gy of Cobalt radiation to the lower adomen pelvic area. The Cobalt radiation created a harsh evironment with my body responding with the Prostate and Kidney cancer. No evidence of any remaining Testicular cancer.

Kidney cancer treated October 13, 2003 laproscopic surgery with cryoablation. 4cm mid-pole right kidney stage 1 T1 N0 M0, original size 2cm in 2002. Cancer identified as Papilliary Fuhrman grade 3. After surgery continued scans indicate NED status.

Original diagnosis Gleason 9 (4+5) 70% cores, perineural invasion, T1c N0 M0, August - October 2002 completed external beam 70Gy 3D-CRT. 2 years of Zoladex adjuvant hormone mono therapy. After last Zoladex in 2004 PSA; started rising July 2006 PSA 1.3.

In January 24, 2008 PSA is 38.2 with 3 month doubling time. Restart Zoladex PSA response to 0.8 Jan 27, 2009 with doubling time reset to 4 months. Casodex tried with no success April 2009. Psa to 57.97 on November 24th, 2009 doubling time 18 days. Start Abiraterone Acetate clinical trial with Prednisone. Study is still blinded so I hav no idea if I could take the drug today.

Psa 86.09 on January 22nd, 2010 so stopped Abi clinical trial. Even with Zoladex PSA is 269.9 on March 2nd, 2010. On March 23rd start Sipuluecel-T compasionate clinical trial. On April 27th Provenge trial completed, PSA is 449.7 bone marrow involvement. Start weekly Taxotere chemo infusions, dexamethasone, and 1 or 2 units of blood. PSA maxed at 523.3 May 18, 2010. Alk Phos 1800.

Paul Harvey was a great radio personality, he like Garrison Keillor in Prarie Home Companion are two amazing voices that will never be forgotten. Now as Paul Harvey would say .... "Stay tuned for the REST of the story!"

UPDATED

June 2013

Merle died on March 23, 2013, after almost two years in hospice.


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